Sunday, July 13, 2008
Camp Sunshine
We are about to travel from Orlando to Portland, Maine to attend Camp Sunshine; it will be the first time we meet other families who have children with DBA.
Silent Auction flier
Here is the flier for the silent auction that will be held at FINNHENRY'S in downtown Orlando on 8.08.08.
Golf Outing Flier
Finn Gunderson Benefit
We are looking forward to the upcoming benefit on 08.08.08 and our dear friend, Steve Foxbury, will be performing at the Social with his band, The Battle Sigh! We can't wait to see everyone and to see Steve play back in Orlando!
Saturday, July 12, 2008
Finn's Personality and a little about RBC
Finn is a happy baby and he is tough. He gets his finger pricked once or twice a week to get a red blood cell count and he rarely cries and, most often, he does not even wince. After he gets his finger pricked and a large enough sample of blood is drawn into a vile, his blood is analyzed by an amazing machine that--in about a minute--provides a detailed analysis of many aspects of his blood.
An average healthy individual's red blood cell count should be between 12-16. It has been recommended to us that Finn's red blood cell count should not be allowed to fall below 8.
The Goal of the Finn Gunderson Journal
The Finn Gunderson Journal will serve to keep friends and family up to date on Finn's struggle with Diamond-Blackfan Anemia, which, in turn, will help us all to know more about the disease, its treatment, and, hopefully, its cure.
DBA forces Bridget and I to live in very focused way. This blog will, hopefully, transcend all of the isolated, individual moments by stringing them together into something more linear and narrative.
I call this the Finn Gunderson Journal because it will focus on him. He is the main character and the hero of this journal. However, in order to tell his story, it will necessarily involve many other people--the growing community of people who have reached out--each in his or her own way--to help our child.
I encourage people to comment and to ask questions. This is important because the story of Finn's struggle with DBA is also, very much, a story about community. Just as Finn could not fight DBA without his mother and I, we would find it nearly impossible to ensure Finn gets the best care that we can give him without the support of all of our family and friends, the latter of which includes all of the nurses and doctors Finn visits once or twice a week.
Peace.
DBA forces Bridget and I to live in very focused way. This blog will, hopefully, transcend all of the isolated, individual moments by stringing them together into something more linear and narrative.
I call this the Finn Gunderson Journal because it will focus on him. He is the main character and the hero of this journal. However, in order to tell his story, it will necessarily involve many other people--the growing community of people who have reached out--each in his or her own way--to help our child.
I encourage people to comment and to ask questions. This is important because the story of Finn's struggle with DBA is also, very much, a story about community. Just as Finn could not fight DBA without his mother and I, we would find it nearly impossible to ensure Finn gets the best care that we can give him without the support of all of our family and friends, the latter of which includes all of the nurses and doctors Finn visits once or twice a week.
Peace.