The Goal of the Finn Gunderson Journal

The Finn Gunderson Journal will serve to keep friends and family up to date on Finn's struggle with Diamond-Blackfan Anemia, which, in turn, will help us all to know more about the disease, its treatment, and, hopefully, its cure.

DBA forces Bridget and I to live in very focused way. This blog will, hopefully, transcend all of the isolated, individual moments by stringing them together into something more linear and narrative.

I call this the Finn Gunderson Journal because it will focus on him. He is the main character and the hero of this journal. However, in order to tell his story, it will necessarily involve many other people--the growing community of people who have reached out--each in his or her own way--to help our child.

I encourage people to comment and to ask questions. This is important because the story of Finn's struggle with DBA is also, very much, a story about community. Just as Finn could not fight DBA without his mother and I, we would find it nearly impossible to ensure Finn gets the best care that we can give him without the support of all of our family and friends, the latter of which includes all of the nurses and doctors Finn visits once or twice a week.

Peace.